Why we are fighting to keep things the same

I and Andrew Rees (a friend of my husband) have Enduring Power of Attorney for Pete which means that we make decisions for Pete based on what is in his best interests.
We feel that removing Pete’s current care package would be detrimental to us as a family for the following reasons

• Pete is terminally ill and any change will cause him great distress which may cause him to deteriorate further
  
  
• Pete’s carers have all looked after him for at least 6 years and have an amazing ability to understand his needs despite his extremely limited communications skills
  
  
• The NHS has a limited ability to fund a social care package and so the best they could offer would be equivalent to what Home-care currently do ie personal care with up to 5 visits a day and would not be able to fund sitters.

This means that I would be unable to work or socialise, take my daughter to and from school, spend time with her outside our home or run children’s and youth clubs. I would have to ask friends to help out whenever I left the house for any reason, even to buy groceries.